Walling HIV/AIDS out of the Walled City
By Shehar Bano Khan
SHE does not want to be identified as the one suffering from HIV/AIDS. Cooped up in one corner of the room Chand Bibi, a 43-year-old woman, looks rather running low on energy. Her pale face needs not be diagnosed as anaemic by a doctor to provoke empathy of those sitting in the room. But the 50 or so women and children, gathered at a makeshift conference hall at the Bhati Gate, in the Walled City, do not know that Chand Bibi has AIDS.
They have been invited by the Church World Service-Pakistan/Afghanistan, an ecumenical non-profit organisation working in development area, to educate them about a subject considered taboo in society. Chand Bibi, who refuses to go public with her disease, is attending the instructional meeting on the understanding with the convenor of the meeting, Ms Ayesha Hassan, that she would not be asked to speak or discuss her condition with the other women. “There is a wide discrepancy in the actual figure of HIV/AIDS cases in Pakistan. The government estimates about 2,500 cases, while the UNAIDS has stated the number of cases to be between 70,000 to 80,000,” says Ms Ayesha Hassan.
For the past three years, the NGO has been involved in the ‘Community Awareness Programme on HIV/AIDS’. The programme focuses primarily on those people who have little or no access to adequate health facilities and even less knowledge about what HIV/AIDS entails. It is at one of these sessions that Chand Bibi finds herself listening to Ms Hassan trying to educate women on the fatality of the disease.
The confidentiality of Chand Bibi’s condition makes it difficult to ascertain how or when she contracted HIV leading to AIDS. A brief profile given by Ms Hassan indicates that her truck driver husband died under ‘mysterious’ circumstances. “Her husband died three years ago, leaving her with four children. That’s as far as I can tell you because she insists her husband was healthy,” informs Ms Hassan.
Non-acceptance and lack of willingness for transparency on the part of women are some of the challenges facing a number of non-profit organisations working on HIV/AIDS.
Statistics gathered by the Church World Service-Pakistan/Afghanistan claim that an estimated three million drug addicts exist in Pakistan, out of whom an estimated 60,000 to 100,000 contract the disease by injecting drugs. “Many of these drug addicts are also professional blood `donors’, making the probability of HIV transmission from them to the general population extremely high,” says Ayesha Hasan.
Shahnaz Parveen, familiar with the pattern of AIDS, lost her younger brother who was a drug addict. “It is the worst kind of disease someone can get in this society because the doctors are also afraid to treat the patient. I am sure he got it from wearing second hand shoes which he had bought,” exclaims Shahnaz Parveen during the instructional meeting.
Ms Parveen is not the only one ignorant of the causes. Most of the women believe that HIV is transferred through mosquito bite or is as uncomplicated as the simple use of sharing the same towel as the patient’s. The rest reserve their understanding of the disease to its transmission through sexual contact only.
Under this community awareness programme activities are carried out with young impressionable school children to make them more aware of the fatality of the HIV/AIDS.
They are encouraged to articulate their understanding of the disease through poster and slogan writing competitions. “Students also take part in quiz competitions and speeches,” explains Ayesha Hasan.
During these sessions Ms Hasan informs the group about the HIV/AIDS programme being run by the government of Pakistan. “We have told them about the free of charge facility run by the government for conducting HIV blood tests, which they are advised to take regularly. We also distribute easy to read booklets and at the end of the session ask participants to sum up what they have learnt. In the beginning of the programme most of them didn’t know much about essential hygiene practices. Now, few of them advise their husbands to use new razors for shaving,” states Ms Hasan.
The programme emphasises on dispelling myths and stigma attached to this disease and provides women with information on how to prevent HIV from spreading. “According to an estimate, women are 40 times more at risk of getting AIDS and also happen to be its carrier which can be passed on to children. That’s why it is important to educate them as it might be the only difference between life and death,” believes Ms Ayesha Hasan.


